ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Thursday, March 2, 2017

Solutions Don't Have To Be Complicated Or Expensive

Goal:  To encourage participation in ALS clinical research.

This morning there are 79 recruiting ALS trials at clinicaltrials.gov. About half of them are interventional.

Solution:

Pay an impecunious college student (preferably one with a parent with ALS) $15 per day to post a daily tweet and Facebook post featuring one of the trials.

That is not hard.  It takes effort and a reliable student and a budget of around $5000 per year.  It provides a precious very part-time work opportunity for a student in need of cash.

This will cycle information about every recruiting trial to those dealing with ALS every 2-3 months.

Simple.


1 comment:

  1. Thank you for voicing exactly what we are feeling in the ALS community, frustration, anxiety and lack of hope and that's just in regards to clinical trials!!!

    ReplyDelete