Following is a link to the full paper written as a part of my epatient participation in the Precision Medicine track at
Stanford's Medicine X 2016:
"A Study in Customer Experience in Clinical Trial Inquiry in the United States"
A brief summary was also given in an Ignite! presentation at Medicine X, and results will be presented in a poster session at the 27th International Symposium on ALS/MND in December.
Many thanks to all with ALS and their loved ones who have ever sought to participate in clinical trials. I hope that the information in this study will make an easier path in the future.