ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Friday, November 14, 2014

Please, Let The Conversations Begin

The abstracts for the big annual ALS MND Symposium have been posted --

http://www.mndassociation.org/research/International+Symposium/abstracts2014

There's something for everyone interested in defeating ALS.

I hope that next year they will post those abstracts in a framework that would permit some public
conversations.  Every study is extremely important both to the authors and to all dealing with ALS.  How energizing it would be if patients, caregivers, authors, and others could comment and ask questions on the important "so what" that goes with every one of those research findings!

In the meantime, we have been advised that people can submit their questions to research@mndassociation.org . That's an appreciated resource, but if we learned one thing about ALS and buckets of ice, it's that there are millions of people interested in ALS who are active in our world of social media, and many have invested heavily in these projects.  Please give them ways to comment, ask questions, and share the good news publicly.

Please, let the conversations begin.

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