The concerns about the Lou Gehrig bobbleheads have been around for years. ALS neck weakness is one of the most difficult parts of this stinking disease.
In this, a special year to remember Lou and to educate people about ALS, it's time to address the problem seriously.
A few weeks ago on the ALS forum at www.patientslikeme.com, a woman with ALS posted her comments about a fundraising message she had just received promoting a Lou Gehrig bobblehead as a premium. She was shocked. Her final words in the posting were, "Does it come with a neck brace?" More patients spoke up. No response.
Then on the ALS Association of Greater New York facebook wall where the fundraising promotion was posted, a number of people spoke up, too. No response.
Then on Jonathan Eig's facebook wall and twitter feed, he asked a thoughtful question about these bobbleheads being offensive. Good discourse. Not 100 percent agreement, but the overwhelming sentiment among those who have dealt with ALS is that these are offensive.
And during this whole time this blog site has had an interesting array of daily traffic watching the postings regarding the bobbleheads. Isn't anyone going to take some constructive action?
Everything is not fine. Those who who hold the responsibility to stop the promotion of these little statues need to step up, but first they need to take off the sound-deadening earmuffs and listen.
Please bury the bobbleheads. You know they are simply wrong. You know that this is an opportunity to educate people about ALS and about what happens to people like Lou Gehrig after they say their courageous farewells.
I don't know what Eleanor Gehrig would say, but I had a loved one who struggled terribly with ALS neck weakness. Imagine your heavy head resting down on your chest and your neck being completely powerless. That's ALS. That's why these trinkets are wrong. Then again, perhaps I do have an idea of what Eleanor Gehrig would say.
No, everything is not fine right now. Thanks for listening.