- One arm of our government has built a national ALS Registry featuring online information, data entry, and risk factor surveys for people with ALS. They have spent almost $40 million taxpayer dollars and are asking for more.
- Another arm of our government has just implemented rules for people with ALS who need Speech Generating Devices. They will not be able to access the internet during a 13-month rental period.
We have just built a very expensive highway and have blocked access to the people who need it most. And those signs that were put up April 1 are going to be dreadfully expensive to take down.
This is just outrageously stupid.