- A few weeks ago Team Gleason assembled an unprecedented group of scientists, clinicians, and organizations (at Team Gleason expense) to put their heads together and fix the fight against ALS. The MDA was among the organizations represented.
- Throughout the Team Gleason Summit, conversations touched on information needs and the data concepts that would be central to speeding the development of therapies. It was a persistent thread.
- As I listened on the webcast, I didn't hear a peep from the MDA about information or data. Not a word. Nothing.
- Today we see this big announcement from the MDA -- http://mda.org/media/press-releases/quintiles-selected-muscular-dystrophy-association-develop-us-disease-registry
So much for putting heads together. I'm not sure that Team Gleason got its money's worth.