ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Friday, February 15, 2013

Nobody Speaks For A Patient As Well As A Patient

http://abcnews.go.com/blogs/health/2013/02/15/living-with-lou-gehrigs-disease-blocked-from-drug-trials/#.UR4_Lax-52E.twitter

"I hope the FDA hearing overflows with ALS patients, caregivers and health professionals. I hope the system for electronic comments breaks down under the weight of comments. Because, as people living with ALS, we need to make a big noise."
Catherine Wolf, A Woman With ALS




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