ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Monday, October 8, 2012

Mark Your Calendars

This morning while googling to defeat ALS, we found this --

Click here for document.


It contains important information about the October 25 FDA meeting on the 20 diesase areas that has been on our radar.

PLUS

There is a link regarding an October 10 FDA "consultation meeting" to address "considerations and challenges in establishing and conducting a process that will be useful to both the patient community and FDA."  There is a link to the Federal Regsitry information on this meeting and instructions to contact PatientFocused@fda.hhs.gov for information to participate.  I believe that remote web access is possible. 



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