Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Tuesday, January 17, 2012

If You Want To Be A Celebrity Spokesperson, Get A Disease Other Than ALS

The news is buzzing this morning about Paula Deen, her unfortunate diagnosis of Type II Diabetes, and the opportunity she will seize to be a spokesperson for Novo Nordisk in their direct-to-consumer marketing efforts. Phil Mikelson, Sally Field, Blythe Danner, Bob Dole, and others have raised awareness of both conditions and drugs to treat their conditions (and have made more than a few bucks for their efforts).

ALS would have some great celebrity spokespeople -- Lou Gehrig, David Niven, Jacob Javits, Michael Zazlow, Chairman Mao (how interesting that would have been), a significant number of NFL stars, Catfish Hunter, Charles Mingus, Dennis Day, Lead Belly, George Yardley, Georgia Bird, and on and on...

Oh, the problem is that they have no drug to speak about. And they die.


  1. You are absolutely right! We need early access to new drug treatment. I belong to ALS-Treat Us Now! Steering Committee.We have a dream: that all pals have early access to new drugs so that we can live longer to see a CURE!

    Please sign our petition:

    check us out on FB:

    If you want to get involved email us at


  2. Thank you Sharon, there is hope but we must band together to take our message to both the Drug companies and the FDA. Thanks for your links.
    BTW I believe the correct email is: