Since the top leadership from ALS and MND organizations worldwide are in Sydney at this very moment for their annual summit, perhaps they'll get some ideas about how to raise awareness. It is important. The AIDS cause knows that. When will the ALS cause figure it out?If any of the ALS delegates or researchers went to see Bono light up Sydney, lets hope that they went to be inspired and not simply entertained.
Exactly-do what the AIDS campaign did-BRING ATTENTION to our cause. Some of us PALS have generated an ALS Petition for giving us Compassionate drugs soon. We are 900 strong and growing. Please take a look at our ALS Petition and support our cause.
ReplyDeletehttp://www.change.org/petitions/corporate-citizens-authorize-and-make-available-compassionate-use-drugs-for-als-patients-now