ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Monday, November 28, 2011

There Is Redeeming Social Value in Twitter

We are getting an interesting window in to what is happening at the International ALS MND Symposium in Australia via twitter. Watch for hashtag #ALSSYMP ... and thanks to @alstdi and @mndaustralia for their interesting tweets from the Ask the Experts session.

Perhaps this will plant a seed that people with a disease that steals their ability to speak and travel and be mobile deserve more opportunities to be a part of the conversation with those who are searching for a treatment. Surely there would be some synergies to these parties knowing each other better.

Yes, twitter is for more than self-serving organizational announcements.

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