ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Tuesday, April 12, 2011

Here Is Living Proof That People With ALS Are Bright Lights

Here is an interesting letter that is pertinent to the U.S. national ALS Registry and the substantial advocacy work that has enabled it. It was written by a gentleman with ALS.

http://bit.ly/fN2TCk

Many of us look forward to the response and to some status information on the registry project. People with ALS have all their marbles (and many obviously have a considerable marble count), and they have skin in this substantial government project. This has been described as a well-funded project by the CDC. We all hope that it delivers.

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