ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Monday, February 7, 2011

ALS Advocacy Conference Information Is Posted

From an email from the ALS Association advocacy department --

The ALS Association is pleased to announce that online registration for the 2011 National ALS Advocacy Day and Public Policy Conference will open at 11:00am (EST) on Monday February 7, and will be available on The Association's website at www.alsa.org/policy/alsday.cfm.

An electronic copy of the 2011 conference registration brochure also will be available on the site and can be found here. The brochure includes a detailed schedule of events for this year's conference, which takes place in Washington, DC May 8-10. Hotel information and details on registration fees, including Sunday only fees, early bird registration deadlines and how to reserve an ADA accessible hotel room, also can be found in the brochure.

Please note that in order to request an ADA accessible hotel room, attendees must contact Mary Wisniewski, event planner for the conference, at adaroom@alsa-national.org or by phone at 202-746-0043 (please note this new email address). ADA room reservations open at 11am EST on Monday, February 7. As always, The ALS Association waives conference registration fees for all people with ALS and a caregiver traveling with them to Washington, DC.

The Advocacy Conference has played a major role in advancing the fight for a treatment and cure, inlcuding helping to secure $580 million in government funding for ALS research and vital Medicare benefits and benefits for military veterans and their survivors. Equally important, the conference empowers people with ALS and their families with the ability to fight back in the war against ALS. Click here to learn more about this year’s exciting conference. We hope you will join us this May as we continue to create the roadmap that will lead to a treatment and cure for ALS.

If you have any questions about the 2011 conference, please contact us at advocacy@alsa-national.org or toll-free at 1-877-444-ALSA.

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