ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Tuesday, September 21, 2010

Q4 2010 Is Just Around The Corner... Is The ALS Registry Finally Here?



Following is information from the ALS Association Washington, DC Advocacy Office:

ALS Registry Webinar
Tuesday, September 28, 2010
2:30-3:30 pm Eastern


We are pleased to invite you to participate in an interactive webinar on the National ALS Registry on Tuesday, September 28, 2010 from 2:30 to 3:30 pm (Eastern). Leaders from the Agency for Toxic Substances and Disease Registry/Centers for Disease Control and Prevention (ATSDR/CDC) will present the latest news on the Registry as the Agency prepares to launch the Registry’s online web portal, which will permit people with ALS to self-enroll in the Registry.

The webinar is designed specifically for people with ALS and their families to help you prepare for the launch of the web portal. Specifically, the webinar will include:
Background information and an update on the implementation of the Registry and web portal;
A preview of the online web-portal that PALS will access to enroll in the Registry; and
Information about The ALS Association resources that will be available to people with ALS and families, including online resources.
In addition, the webinar will provide you with an opportunity to ask any questions you may have about the Registry and the web portal.


WHEN: Tuesday, September 28 at 2:30pm Eastern
WHAT: National ALS Registry Webinar
HOW to Access the Webinar Presentation:
To join the webinar and view the presentation on your computer, go to:
https://alsa.webex.com/alsa/j.php?ED=140870002&UID=1134170547&PW=NMjMyMzU3YzU3&RT=MiM0

Space is limited to the first 200 participants so please plan to login early to secure your spot.

To join the audio conference: Call-in toll-free number (US/Canada): 866-699-3239 Access code: 827 385 412 Meeting Password: Registry3

If you have any questions, please contact the Advocacy Department at
advocacy@alsa-national.org. Thank you!

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