ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Tuesday, May 4, 2010

As We Give Thanks This Advocacy Day


I have a feeling that at the upcoming conference we'll hear much about the millions of dollars for DOD research that has been raised through advocacy efforts and the millions of dollars raised for the yet-not-delivered National ALS Registry. We are thankful.

But perhaps the most significant legislative victory that I'm thankful for in the last year is the biotechnology patent protection that was included in the healthcare reform package. We can disagree all we want on healthcare, but this nugget included in the legislation will give medical research huge incentives to invest in the expensive world of new biotech therapies.


For that, I'll be thanking every legislator. Those both for and against the healthcare package had a hand in getting the biotech patent protection. We are thankful. Not big-turkey-dinner thankful, but Miss-Broiler-chicken-leg thankful.
Until ALS is cured, we can't afford to bask in big-turkey-dinner thankful. There is still so much to do.

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