ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Monday, March 22, 2010

For Your May Travel Planning...

Following is from an email communication received from the ALS Association last week:

Have you registered to attend the 2010 National ALS Advocacy Day and Public Policy Conference May 9-11 in Washington, DC? If you plan to join us in the nation's capital, please register and reserve your hotel room TODAY! The deadline to receive reduced registration and hotel rates is Friday, April 9, just a few weeks away.

Your participation in the Advocacy Conference is needed to help make a difference in the fight against ALS. Successes like establishing an ALS registry, securing more than $400 million in funding for ALS research, and eliminating the 24-month Medicare waiting period could not have been accomplished without the efforts of individuals who have participated in Advocacy Day. However, the ALS community needs your help today more than ever. So please plan to join us in Washington this May!
Early Bird Registration Deadline: Friday, April 9
You must register by FRIDAY, APRIL 9 in order to receive the reduced conference registration rate of $175 ($350 for non-affiliates) and $25 for children age 3-16. Fees for registrations submitted after April 9 are $350 for attendees affiliated with The ALS Association, an ALS Association Chapter or other affiliated organization, $700 for non-affiliates, and $50 for children.
Conference registration fees are waived for all people with ALS and for a caregiver traveling with them to the conference.
Click here to register:
2010 National ALS Advocacy Day and Public Policy Conference.
Hotel Reservation Deadline: Friday, April 9
April 9 is the deadline to reserve a hotel room at the reduced conference rate of $219 + tax/night. After the deadline, this special rate no longer will be available to attendees. Moreover, the hotel no longer will hold rooms specifically for conference attendees and it is possible that, after the deadline, the hotel will not have rooms available during the conference dates or they may be available at much higher rates.
To reserve a hotel room, please contact the hotel directly:
JW Marriott Hotel
1331 Pennsylvania Ave, NW
Washington, DC 20004
Phone: (202)-393-2000

ADA Rooms
The ALS Association has reserved ADA rooms at several different hotels in Washington, DC to help ensure that all PALS who want to attend the conference have access to ADA accessible accommodations. If you or your Chapter wish to request an ADA hotel room, you must contact Mary Wisniewski, event planner for The ALS Association's 2010 National ALS Advocacy Day and Public Policy Conference. She can be reached at
marywisniewski@comcast.net or by phone, (202) 746-0043. Please do not contact the hotel to request an ADA room as the hotel will not be able to guarantee your request.

Click here,
http://www.alsa.org/files/pdf/advocacy/2010_ADV_Brochure.pdf, to see the agenda for this year's conference and plan to join us as we continue to create the roadmap that will lead us to a treatment and cure for ALS.

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