ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Saturday, November 8, 2008

Communication from the ALS Association

The following is from an November 7 communication from the ALS Association:

CNN Veterans Day Special Includes Features on ALS
Beginning today, CNN is launching a special series on CNN.com about our nation’s military heroes called “Veterans in Focus: Service, Struggle & Success.” One of the stories focuses on Thomas Cuddy, a veteran with ALS from the DC-MD-VA Chapter. The story discusses what it is like to live with ALS as well as the links between ALS and military service and the new regulations issued by VA to provide benefits to veterans with ALS. We anticipate that companion articles also will be featured on the site throughout the week of Veterans Day. The video is available online at
http://www.cnn.com/SPECIALS/2008/news/veterans.in.focus/. Scroll down on the page and select the link “Vet battles disease.”
Dr. Lucie Bruijn, senior vice president of research and development of The ALS Association, is scheduled to appear on “House Call with Dr. Sanjay Gupta” at 8:30 a.m. ET this Saturday and Sunday, November 8 and November 9. Dr. Bruijn will discuss multiple topics related to ALS, including military veterans with ALS, the International Symposium on ALS/MND in England, and the latest on promising research that could lead to new treatments and a cure and clinical trials. If you miss the show this week, watch a podcast of the show at 3 p.m. ET Monday, November 10 at CNN.com/health. Just look for Dr. Gupta’s photo and click on the podcast link. The story about Thomas Cuddy also will be aired on "House Call with Dr. Sanjay Gupta."
Veterans Resources Available Online
Links to the CNN stories will be available via the new Veterans section of The ALS Association’s website,
http://www.alsa.org/policy/veterans.cfm. The site also includes important resources for veterans with ALS, their families and survivors such as answers to frequently asked questions about the new VA regulations for ALS and a link to our Roll Call of Veterans. Please continue to encourage all veterans you know to join the Roll Call of Veterans. Non-veterans also can become ALS Advocates via the site and receive the tools and information they need to help us fight for veterans and all people with ALS. If you have any questions or would like additional information, please contact the Advocacy Department at advocacy@alsa-national.org or toll free at 1-877-444-ALSA.

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