Following is a statement from the ALS Association regarding the ALS Registry Act:
Senate Passes ALS Registry Act
The United States Senate passed the ALS Registry Act on September 23, marking a huge victory for people with ALS and their families across the country. The outreach from the ALS Community in this effort has made a difference!
The bill now heads to the House of Representatives, which is expected to quickly agree to the Senate version, which included technical changes made during the legislative process. The ALS Association will keep the ALS Community updated as the bill moves toward enactment into law.The ALS Association extends congratulations to everyone who has worked so hard to make this day possible!