How Many People Die From A Mysterious Disease

...never knowing that it was really ALS?

This is a must-read -- http://familialals.blogspot.com/2010/10/how-can-familial-als-be-secret-part-1.html?spref=tw

How many thousands of people die before a correct diagnosis? It's outrageous. Perhaps a perception of a disease being "rare" is one of those things that propagates itself.