There is an excellent article in this morning's Wall Street Journal -- "Frustrated ALS Patients Concoct Their Own Drug," by Amy Dockser Marcus.
These are not whack-job patients who are grasping at theories that make no sense. These are young, bright patients who have done their homework and have a disease with no effective treatment options. The only options that the medical establishment offers them involve a quick downhill slide to death. Who can blame them for daring an intelligent roll of the dice?
Shame on us who are healthy and have provided them with a medical establishment that has not delivered for them and that cannot deliver in a time-frame that will help them. Shame on us for painting them into a corner. Bravo to them for making the world pay attention as they try to buy some time. Ben Harris and Eric Valor are heroes.
WSJ
These are not whack-job patients who are grasping at theories that make no sense. These are young, bright patients who have done their homework and have a disease with no effective treatment options. The only options that the medical establishment offers them involve a quick downhill slide to death. Who can blame them for daring an intelligent roll of the dice?
Shame on us who are healthy and have provided them with a medical establishment that has not delivered for them and that cannot deliver in a time-frame that will help them. Shame on us for painting them into a corner. Bravo to them for making the world pay attention as they try to buy some time. Ben Harris and Eric Valor are heroes.
WSJ
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