tag:blogger.com,1999:blog-62716487695149713.post7592980036678163260..comments2023-10-09T02:33:17.014-04:00Comments on ALS ADVOCACY: "The FDA Will Listen To Your Voice If You Choose To Express It"ALSadvocacyhttp://www.blogger.com/profile/15638650524805735994noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-62716487695149713.post-73289498412726353872015-01-12T16:24:03.932-05:002015-01-12T16:24:03.932-05:00I would like to call attention to a petition to FD...I would like to call attention to a petition to FDA on this subject. The petition isn't binding FDA to anything but certainly would indicate to them the need and the feelings of patients and families dealing with ALS. Please consider signing and spreading the link in your circles.<br /><br />http://www.change.org/p/food-and-drug-administration-preliminary-approval-of-genervon-gm6-for-use-in-als<br />ENVhttps://www.blogger.com/profile/12280172399742129526noreply@blogger.comtag:blogger.com,1999:blog-62716487695149713.post-54407082674120877832015-01-12T12:26:22.680-05:002015-01-12T12:26:22.680-05:00As an ALS sufferer in the UK I have felt very enco...As an ALS sufferer in the UK I have felt very encouraged by the results of this trial. I have been doing all I can to promote approval by the FDA from this side of the pond. These are very exciting times for us and we need to get the world behind us.Anonymoushttps://www.blogger.com/profile/05467968521623590898noreply@blogger.comtag:blogger.com,1999:blog-62716487695149713.post-76215616563318562682015-01-11T17:59:41.023-05:002015-01-11T17:59:41.023-05:00This is an important moment in the treatment of AL...This is an important moment in the treatment of ALS. I am proud to play the roles of both lab-mouse and advocate.ENVhttps://www.blogger.com/profile/12280172399742129526noreply@blogger.com