tag:blogger.com,1999:blog-62716487695149713.post5592880763468306196..comments2023-10-09T02:33:17.014-04:00Comments on ALS ADVOCACY: Yesterday Was A Lemon Of A DayALSadvocacyhttp://www.blogger.com/profile/15638650524805735994noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-62716487695149713.post-42121972090425807452013-01-06T11:47:57.724-05:002013-01-06T11:47:57.724-05:00GREAT POSt -- It's time to move the ball -- se...GREAT POSt -- It's time to move the ball -- see http://tmurph58.tumblr.com/ Thomas Murphyhttps://www.blogger.com/profile/16855460736487636102noreply@blogger.comtag:blogger.com,1999:blog-62716487695149713.post-58508054777824229032013-01-05T09:16:57.354-05:002013-01-05T09:16:57.354-05:00As a participant in the Empower trial I would like...As a participant in the Empower trial I would like to see the data absorbed into the PRO-ACT data base at least. All those blood tests and other EKGs , etc., should not be for nothing!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-62716487695149713.post-72717864053698890492013-01-05T08:58:10.229-05:002013-01-05T08:58:10.229-05:00ALSFRS-R just doesn't measure disease progress...ALSFRS-R just doesn't measure disease progression very well. Do they measure the right things in these clinical trials? Maybe patients could help them come up with different ways to measure.Anonymousnoreply@blogger.com