tag:blogger.com,1999:blog-62716487695149713.post4240060497763219808..comments2023-10-09T02:33:17.014-04:00Comments on ALS ADVOCACY: Are You Reading This On The Bad Internet Or On The Good Internet?ALSadvocacyhttp://www.blogger.com/profile/15638650524805735994noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-62716487695149713.post-4636169878443519822013-05-26T16:37:56.988-04:002013-05-26T16:37:56.988-04:00Here's a link to the Bedlack presentation --
...Here's a link to the Bedlack presentation --<br /><br />https://www.facebook.com/alsassociation?sk=app_142371818162&app_data<br /><br />ALSadvocacyhttps://www.blogger.com/profile/15638650524805735994noreply@blogger.comtag:blogger.com,1999:blog-62716487695149713.post-20421545333197083242013-05-25T20:09:57.051-04:002013-05-25T20:09:57.051-04:00Hi. Is there a link where I can read or listen to...Hi. Is there a link where I can read or listen to Dr. Bedlack's webstream presentation? I could not find it on the internet. I was curious as to which therapies were found to be "so laughable". Any on the "open reviews" of ALS untangled?<br /><br />Recently, I'm learning a bit more about my family history. My parent, who I thought had SALS, now may have had FALS. That is why I am interested.<br /><br />Thanks.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-62716487695149713.post-39516865276240539092013-05-15T08:42:57.081-04:002013-05-15T08:42:57.081-04:00I was in the audience as Dr. B presented his X-Fil...I was in the audience as Dr. B presented his X-Files-inspired talk. I am neither staff, nor a fundraiser for ALSA. I am a caregiver of my 40-year old sister. I was a caregiver 20+ years ago of my, now deceased, mother. ALS is anything but funny. So, to a room full of PALS, caregivers, & loved ones, a chuckle here & there is quite welcomed. We love the internet & scour it whenever time permits. However, time is one thing that those fighting ALS do not have in abundance.Anonymoushttps://www.blogger.com/profile/05101810656132707529noreply@blogger.com