tag:blogger.com,1999:blog-62716487695149713.post997264129960013632..comments2023-10-09T02:33:17.014-04:00Comments on ALS ADVOCACY: ALSA 2009 Advocacy Priorities Being FormulatedALSadvocacyhttp://www.blogger.com/profile/15638650524805735994noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-62716487695149713.post-61123044290954978242008-12-03T09:41:00.000-05:002008-12-03T09:41:00.000-05:00We need to get ALS front and center and on the min...We need to get ALS front and center and on the minds of every legislator and major media person.<BR/><BR/>That would certainly make a lot of the priorities much easier to achieve.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-62716487695149713.post-84278170868663670852008-12-03T09:37:00.000-05:002008-12-03T09:37:00.000-05:00So we can only do three advocacy things a year? T...So we can only do three advocacy things a year? <BR/><BR/>That seems weird for a disease that demands ultimate multitasking skills from patients and caregivers.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-62716487695149713.post-11590796850741645272008-12-02T15:10:00.000-05:002008-12-02T15:10:00.000-05:00Long-Term Care ServicesWith a new president the ec...Long-Term Care Services<BR/>With a new president the economy should rebound under two years. Then we will have a political environment ripe for ALS respite care. Legislation should begin soon and follow the rulings of the V.A. regarding ALS. Because this is far from budget neutral until we get the deficit under control this legislation would be DOA. Unfortunately this is viewed as custodial care and the government doesn’t fund it unless financially destitute and on Medicaid. I suggest start building grassroots support now with a list server and online petition. A year from now the timing will be right to contact Congress. Without a very large grassroots movement this will never have a chance.Anonymousnoreply@blogger.com