tag:blogger.com,1999:blog-62716487695149713.post4995885613327897069..comments2023-10-09T02:33:17.014-04:00Comments on ALS ADVOCACY: Deju Vu - Let's Have A Different Ending This TimeALSadvocacyhttp://www.blogger.com/profile/15638650524805735994noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-62716487695149713.post-42671272419664482552008-09-20T07:46:00.000-04:002008-09-20T07:46:00.000-04:00Actually, I think it's worse than your envelope de...Actually, I think it's worse than your envelope describes.<BR/><BR/>The next (111th) Congress will last for two years (matching the two-year terms of House members). If they do as they have in the past, they'll save legislation like the ALS Registry Act for the end of that two-year cycle (that is provided we can get all of the committee work and co-sponsors lined up again).<BR/><BR/>My personal opinion is that your 5600 number is probably low (a registry would help, wouldn't it?). In any case, if we start from scratch in January and take another two years, that's around 12,000 lives lost along with the clues they carry. That's waste caused by government, isn't it? That number includes some people who don't even know what ALS is today. <BR/><BR/>Coburn has a medical degree and is licensed to practice medicine in Oklahoma. He is a family practice/primary care physician who seems to like handle obstetric procedures when he is in his district. I cannot find evidence that he has board certification in obstetrics. He is not a neurologist. He is not an epidemiologist. He did take the Hippocratic oath.ALSadvocacyhttps://www.blogger.com/profile/15638650524805735994noreply@blogger.comtag:blogger.com,1999:blog-62716487695149713.post-47465474376520531562008-09-19T20:10:00.000-04:002008-09-19T20:10:00.000-04:00My calculations on the back of my envelop say that...My calculations on the back of my envelop say that should the ALS registry not be enacted this session, then by the time it come up again, 5,600 of us ALS patients will have died, and our deaths will not be entered into any registry. What a dreadful waste, don't you think?<BR/><BR/>Is it true that Senator Tom Coburn is a medical doctor who is blocking this important health registry?Anonymousnoreply@blogger.com