tag:blogger.com,1999:blog-62716487695149713.post1926089407638310733..comments2023-10-09T02:33:17.014-04:00Comments on ALS ADVOCACY: And So We WaitALSadvocacyhttp://www.blogger.com/profile/15638650524805735994noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-62716487695149713.post-64080169962316644082011-03-04T02:07:00.671-05:002011-03-04T02:07:00.671-05:00Wow! This subject sure has fallen with a huge thu...Wow! This subject sure has fallen with a huge thud amongst the ALS community. Are we getting the action we deserve from our silence.ALS Grumpyhttps://www.blogger.com/profile/03197310566321587027noreply@blogger.comtag:blogger.com,1999:blog-62716487695149713.post-80999688209026172892011-01-28T08:59:03.794-05:002011-01-28T08:59:03.794-05:00What happened to Transparency? Simply amazing tha...What happened to Transparency? Simply amazing that we live in the communication age, and still we have a "Failure To Communicate".Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-62716487695149713.post-65541671449745227822011-01-27T21:06:26.234-05:002011-01-27T21:06:26.234-05:00It truly scares me that these bozos don't real...It truly scares me that these bozos don't realize registrants or a good portion of them will be dead before they can figure out a way to publish status reports. I just found out that my CDC password expired without a "by your leave" and that sure should stimulate return visits by the otherwise undetermined number of registrant. I fear Senator Coburn's disdain for CDC may have some basis after all.ALS Grumpyhttps://www.blogger.com/profile/03197310566321587027noreply@blogger.com